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You can use the search box below to find what you need.
¿Qué es el lupus?
El lupus es un trastorno crónico por el cual el sistema inmunitario de tu cuerpo ataca tejidos y órganos.
9 de cada 10 personas con lupus son mujeres.
Las mujeres de raza negra, nativas americanas y de Alaska tienen de 2 a 3 veces más posibilidades de desarrollar lupus que las mujeres de raza blanca.
Casi 1 de cada 2 personas con lupus reciben diagnósticos erróneos inicialmente
Recibir un diagnóstico de lupus puede tomar en promedio 5 años desde que se busca ayuda médica por primera vez.
¿Por qué es difícil diagnosticar el lupus?
Porque los síntomas:
¿Cómo se diagnostica el lupus?
No hay una prueba específica que indique si tienes lupus, así que los proveedores de atención médica (HCP, por sus siglas en inglés) usan una combinación de examinaciones y pruebas físicas para diagnosticarlo.
Examinación física
Tu proveedor de atención médica te hará preguntas relacionadas con tus síntomas, incluyendo:
Pruebas de laboratorio
Podrían hacerse las siguientes pruebas de sangre u orina:
Biopsias
Si tus pruebas de laboratorio muestran alguna anomalía, tu proveedor de atención médica podría extraer un poco de tejidos o una muestra de células mediante un procedimiento (denominado biopsia) para identificar lesiones o inflamación por el sistema inmunitario.
Las biopsias más comunes para personas con lupus son de la piel y los riñones.
Imagenología
El lupus puede afectar tus pulmones y corazón, así que es conveniente que tu proveedor de atención médica se asegure de que estén en buenas condiciones haciendo las siguientes pruebas:
La información es clave
Tu proveedor de atención médica necesita la mayor cantidad de información posible sobre tus síntomas y estado de salud para proporcionar un diagnóstico oportuno y preciso.
¡Cuida tu salud y busca una segunda opinión si sientes que no te escuchan!
Recursos
Lupus Foundation of America
Este recurso educativo se preparó con el apoyo de GlaxoSmithKline, Merck y Novartis.
When
Katja Faber learned her 23-year-old son, Alex, had been brutally murdered, she felt a physical pain, as if her body had been hit by a truck. “From the moment that the police stood at my door and told me the news that he had been killed, I felt altered, not only emotionally, but also neurologically and physically,” Faber said. “It was painful to breathe; my nerve endings were on fire. They say that grief is an all-body experience, and I can certainly confirm that.”
When we think about grief, we often focus on the emotional toll — the sadness, anger and confusion that follow the death of a loved one. But grief isn’t just a mental experience. It can manifest physically in profound ways, long after loss.
The reason grief affects our physical well-being is because “we co-regulate with our loved ones,” said
Mary-Frances O’Connor, Ph.D., professor at the University of Arizona, clinical psychologist specializing in grief research and author of The Grieving Body.
“To think about grief, we really have to think about love and bonding. When we bond with our spouse or our child, we form a dynamic system with them, and it means that each person is an external pacemaker for the other person’s heart,” O’Connor explained. “When a loved one is amputated from our life, our body has to figure out how to regulate without that external pacemaker.”
This sudden disruption forces our physiological systems to adapt, creating a cascade of physical symptoms.
iStock.com/TatyanaGI
The way grief shows up physically can range widely depending on the person and what existing conditions they may have. Common symptoms can include chest pain, insomnia, appetite changes, digestive issues, a “lump in the throat” feeling, as well as cognitive effects.
But it can also have a significant impact on immune function. “Bereavement is associated with
all-cause morbidity and mortality,” O’Connor noted, “which is a fancy way of saying that all the different diseases and causes of death increase when you’re grieving.”
This includes increased rates of chronic obstructive pulmonary disorder (COPD), stroke, pneumonia, sepsis and flu, O’Connor said. “As I was doing research, I wondered, How can it be that every system could be impacted? But if we think about the fact that our immune system affects every organ in the body, then it might start to make a little more sense.”
Research from O’Connor’s lab and others has shown that inflammation increases following the death of a loved one. A
study published in Psychoneuroendocrinology found that people experiencing intense grief showed significantly higher levels of inflammation compared to those with lower grief severity.
This systemic inflammation can affect the immune system and manifests differently depending on a person’s existing health conditions or predispositions. For example, in someone with rheumatoid arthritis, it might present as worsening joint pain, while someone with asthma might experience more breathing difficulties.
O’Connor experienced this herself: About a year after her mother’s death, she developed symptoms that were later diagnosed as multiple sclerosis. While her mother’s death didn’t cause her MS — it runs in her family and she had other risk factors — the intense stress of grief may have contributed to its emergence at that particular time.
Some experience “broken heart syndrome,” or what is officially called “takotsubo cardiomyopathy” — a weakening of the left ventricle of the heart, which can create the symptoms of a heart attack even when there are no arterial blockages.
Nine out of 10 cases are reported in women, and most of those are in women over 50. Takotsubo is not typically fatal, O’Connor said, but it does require medical attention.
Still, others experience more serious heart problems as a result of grief, distinct from takotsubo cardiomyopathy. A
study published in the Journal of the American Medical Association found that in the first three months after losing a spouse, people over 65 have nearly twice the risk of experiencing a heart attack or stroke. An older study in the American Heart Association journal Circulation found the danger of a heart attack was highest in the first 24 hours after the death of a loved one, particularly for those who have existing heart conditions.
O’Connor’s
research shows that blood pressure rises during waves of grief, with the most significant increases occurring in those having the most difficulty processing their grief.
In the first weeks and months following her son’s death, Faber’s symptoms included extremely high blood pressure, heart palpitations, muscle spasms and headache attacks. She additionally suffered from memory loss, chronic fatigue, a weakened immune system, inability to sleep, PTSD, panic attacks and stress-induced early-onset osteopenia, or
low bone-density.
“I had been healthy, yet from one day to the next, I aged 1,000 years,” said Faber. Ten years later, she continues to have issues with her blood pressure and bone loss.
Studies show that cardiovascular disease markers like blood pressure and heart rate tend to return to baseline within about six months for most people. However, O’Connor emphasized that this timeline varies greatly between individuals. For those experiencing chronic grief stress — where the intensity and frequency of grief waves haven’t diminished — physical symptoms may persist, causing additional wear and tear on the body.
iStock.com/LukaTDB
O’Connor stressed that experiencing physical symptoms during grief is entirely normal. “You are not broken because you feel grief in your body,” she said. Still, because bereavement is a time of increased medical risk, these symptoms shouldn’t be ignored.
For those experiencing the physical toll of grief, O’Connor and Faber offered some advice.
“Learning to live again following traumatic loss is not about recovery or survival,” Faber said. “It is about slowly doing painful and exhausting grief work so as to arrive at a point of acceptance, a place where we can both grieve and find joy in life again.”
O’Connor similarly suggests that paying attention to our physical responses helps us honor our connections. “We really honor our loved one by noticing how our bodies changed in their absence,” she said.
For those currently experiencing grief’s physical toll, Faber emphasized that there’s no timeline for healing. “In these 10 years, my grief has not subsided, but has become softer; it lies just below the surface,” Faber said. “It doesn’t take much for me to touch the deep sorrow I feel in knowing that my son is no longer alive, yet in some ways I live more intensely now and appreciate every moment of every day.”
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When Katja Faber learned her 23-year-old son, Alex, had been brutally murdered, she felt a physical pain, as if her body had been hit by a truck. “From the moment that the police stood at my door and told me the news that he had been killed, I felt altered, not only emotionally, but also neurologically and physically,” Faber said. “It was painful to breathe; my nerve endings were on fire. They say that grief is an all-body experience, and I can certainly confirm that.”
When we think about grief, we often focus on the emotional toll — the sadness, anger and confusion that follow the death of a loved one. But grief isn’t just a mental experience. It can manifest physically in profound ways, long after loss.
The reason grief affects our physical well-being is because “we co-regulate with our loved ones,” said Mary-Frances O’Connor, Ph.D., professor at the University of Arizona, clinical psychologist specializing in grief research and author of The Grieving Body.
“To think about grief, we really have to think about love and bonding. When we bond with our spouse or our child, we form a dynamic system with them, and it means that each person is an external pacemaker for the other person’s heart,” O’Connor explained. “When a loved one is amputated from our life, our body has to figure out how to regulate without that external pacemaker.”
This sudden disruption forces our physiological systems to adapt, creating a cascade of physical symptoms.
iStock.com/TatyanaGI
The way grief shows up physically can range widely depending on the person and what existing conditions they may have. Common symptoms can include chest pain, insomnia, appetite changes, digestive issues, a “lump in the throat” feeling, as well as cognitive effects.
But it can also have a significant impact on immune function. “Bereavement is associated with all-cause morbidity and mortality,” O’Connor noted, “which is a fancy way of saying that all the different diseases and causes of death increase when you’re grieving.”
This includes increased rates of chronic obstructive pulmonary disorder (COPD), stroke, pneumonia, sepsis and flu, O’Connor said. “As I was doing research, I wondered, How can it be that every system could be impacted? But if we think about the fact that our immune system affects every organ in the body, then it might start to make a little more sense.”
Research from O’Connor’s lab and others has shown that inflammation increases following the death of a loved one. A study published in Psychoneuroendocrinology found that people experiencing intense grief showed significantly higher levels of inflammation compared to those with lower grief severity.
This systemic inflammation can affect the immune system and manifests differently depending on a person’s existing health conditions or predispositions. For example, in someone with rheumatoid arthritis, it might present as worsening joint pain, while someone with asthma might experience more breathing difficulties.
O’Connor experienced this herself: About a year after her mother’s death, she developed symptoms that were later diagnosed as multiple sclerosis. While her mother’s death didn’t cause her MS — it runs in her family and she had other risk factors — the intense stress of grief may have contributed to its emergence at that particular time.
Some experience “broken heart syndrome,” or what is officially called “takotsubo cardiomyopathy” — a weakening of the left ventricle of the heart, which can create the symptoms of a heart attack even when there are no arterial blockages. Nine out of 10 cases are reported in women, and most of those are in women over 50. Takotsubo is not typically fatal, O’Connor said, but it does require medical attention.
Still, others experience more serious heart problems as a result of grief, distinct from takotsubo cardiomyopathy. A study published in the Journal of the American Medical Association found that in the first three months after losing a spouse, people over 65 have nearly twice the risk of experiencing a heart attack or stroke. An older study in the American Heart Association journal Circulation found the danger of a heart attack was highest in the first 24 hours after the death of a loved one, particularly for those who have existing heart conditions.
O’Connor’s research shows that blood pressure rises during waves of grief, with the most significant increases occurring in those having the most difficulty processing their grief.
In the first weeks and months following her son’s death, Faber’s symptoms included extremely high blood pressure, heart palpitations, muscle spasms and headache attacks. She additionally suffered from memory loss, chronic fatigue, a weakened immune system, inability to sleep, PTSD, panic attacks and stress-induced early-onset osteopenia, or low bone-density.
“I had been healthy, yet from one day to the next, I aged 1,000 years,” said Faber. Ten years later, she continues to have issues with her blood pressure and bone loss.
Studies show that cardiovascular disease markers like blood pressure and heart rate tend to return to baseline within about six months for most people. However, O’Connor emphasized that this timeline varies greatly between individuals. For those experiencing chronic grief stress — where the intensity and frequency of grief waves haven’t diminished — physical symptoms may persist, causing additional wear and tear on the body.
iStock.com/LukaTDB
O’Connor stressed that experiencing physical symptoms during grief is entirely normal. “You are not broken because you feel grief in your body,” she said. Still, because bereavement is a time of increased medical risk, these symptoms shouldn’t be ignored.
For those experiencing the physical toll of grief, O’Connor and Faber offered some advice.
“Learning to live again following traumatic loss is not about recovery or survival,” Faber said. “It is about slowly doing painful and exhausting grief work so as to arrive at a point of acceptance, a place where we can both grieve and find joy in life again.”
O’Connor similarly suggests that paying attention to our physical responses helps us honor our connections. “We really honor our loved one by noticing how our bodies changed in their absence,” she said.
For those currently experiencing grief’s physical toll, Faber emphasized that there’s no timeline for healing. “In these 10 years, my grief has not subsided, but has become softer; it lies just below the surface,” Faber said. “It doesn’t take much for me to touch the deep sorrow I feel in knowing that my son is no longer alive, yet in some ways I live more intensely now and appreciate every moment of every day.”
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For a long time, Sabrina Riddle feared she’d never really know what was going on in her head.
In 2011, she went to her healthcare provider (HCP) with what she thought was an ear infection. She was prescribed antibiotics, but they didn’t help. Nothing did. For months, Riddle walked around with intense pressure in her right ear, and everything sounded muffled — like she was underwater.
When Riddle finally had an imaging test, the scan showed a large mass in her ear. The HCP said it was cancer — even though the pathology report said it wasn’t. But her medical team didn’t know what else it could be.
Riddle had radiation and multiple surgeries to treat and remove the cancer-like tumors. Unfortunately, it wasn’t long before the tumors came back. She went to numerous HCPs for advice, but they all said cancer treatment was the best way to go.
She spent years exhausted, terrified and frustrated. She started to lose hope that anyone would be able to treat her mysterious condition.
After three years of testing, surgeries and failed treatments, Riddle finally learned why she wasn’t responding to treatment. She didn’t have cancer — she had an extremely rare inflammatory disease called immunoglobulin G4-related disease (IgG4-RD).
About 1 in 10 people in the U.S. are living with a rare disease. Like Riddle, most people with rare diseases wait years for a proper diagnosis. On average, it takes four to five years to receive a diagnosis for a rare disease. And many people are misdiagnosed along the way when their symptoms are similar to other health conditions. Underrepresented and marginalized patient groups often experience greater instances of misdiagnosis and longer disease journeys.
“Lack of awareness of rare diseases and their diagnosis and treatment guidelines contribute to this issue,” said Charlene Son Rigby, chief executive officer of Global Genes, a nonprofit organization dedicated to helping people with rare diseases.
Barriers with testing for rare diseases also play a significant role in the delay of diagnosis. “Patients have difficulty getting access to appropriate diagnostic testing, as doctors are not aware of appropriate testing availability, or patients are unable to afford tests due to coverage or cost hurdles,” Rigby said.
To make diagnosis even more complicated, there are cases where the disease is so rare that information and treatment options simply don’t exist. Rigby noted that women and people assigned female at birth (AFAB) can have an especially hard time getting a diagnosis. “For women with a rare disease, getting a diagnosis can include additional hurdles, as gender bias can lead to concerns being dismissed or misattributed symptoms,” she said.
Sabrina Riddle, 2023
People with rare diseases face many different challenges when it comes to access to treatment. These challenges can include:
In the U.S., only 5% of rare diseases have drugs approved by the Food and Drug Administration (FDA) for treatment. And the route to FDA approval can be slow.
For example, for a treatment to be approved by the FDA it must follow a rigorous clinical trial process and demonstrate results that prove the treatment is effective.
Unfortunately, clinical trials for rare diseases can be difficult to put together because the disease affects a smaller pool of people, and funding for research may not be available.
Medicines for rare diseases also have lower success rates compared to mass-produced drugs. “Generally, for every therapy that makes it to market — approved and available to patients — an average of nine others fail,” Rigby said.
Read: Having a Rare Disease Called PBC Taught Me to Speak Up >>
From diagnosis to treatment, it’s important to have reliable, fact-based information if you have a rare disease. Like many health conditions, rare diseases can present in different ways, and symptoms can vary from person to person.
Resources such as the National Organization for Rare Disorders, Genetic and Rare Disease Information Center and Global Genes help connect people with available research and data, experts, and patient advocacy groups.
Finding a patient advocacy group is particularly important for people with rare diseases, as patient advocates are often the point person for different types of support resources that can include:
“Rare disease therapy development demands a different way of thinking, from the way we conduct clinical trials to how we incentivize and fast-track therapies,” Rigby said. “Legislative advocacy plays an important role in driving innovation and enabling faster diagnosis, better clinical care, innovations in research and science, and more impactful therapies.”
Last year, the FDA launched the Rare Disease Innovation Hub as a point of collaboration for the Center for Biologics Evaluation and Research (CBER) and Center for Drug Evaluation and Research (CDER) to improve outcomes for people with rare diseases. Part of the mission is to address challenges like access and delays in diagnosis and grow participation in clinical trials.
Advancements in technology are also helping move research, access and treatment options forward. “Today, technology exists to help accelerate a diagnosis and shrink the time to answers for patients and their families leveraging whole exome/whole genome sequencing. There is a push to add this technology to support newborn screening, but this has yet to be accepted as standard protocol,” Rigby said.
Other advanced technologies, such as artificial intelligence (AI), have been shown to assist data collection, improve rates of diagnosis and reduce cost. Recently, the Advanced Research Projects for Health agency invested $48 million in AI-driven platforms to repurpose existing drugs to address rare diseases that don’t have treatment options.
Riddle said advancements in innovation can’t come soon enough for people like her who are living with a rare disease. “I feel very excited for the research and the trials that are being done. But I’m looking forward to the day when I can say ‘cure,’ instead of ‘remission.’”
National Organization for Rare Disorders
The Rare Diseases Clinical Research Network
International Rare Diseases Research Consortium
This educational resource was created with support from Amgen, a HealthyWomen Corporate Advisory Council member.
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We need enough Vitamin D to stay well and have healthy bones. There’s even some evidence that getting enough vitamin D can lower your risk of dying from cancer or getting Type 2 diabetes.
But have you ever heard the saying, “too much of a good thing?”
When a British man’s overdose on vitamin D sent him to the hospital, many began to wonder about the safety of this vitamin, especially in its supplement form. Read on to learn why vitamin D is so important — and how to get just the right amount of it.
1. Vitamin D is actually a hormone
Yes, you read that right. Vitamin D isn’t just a nutrient you eat or a vitamin you take. Vitamin D is also a hormone that our bodies make when our skin is exposed to sunlight. The process happens because our skin cells have receptors that create vitamin D when they absorb ultraviolet B (UVB) rays.
Not only can your body make vitamin D, but it can make the majority of the vitamin D you need if it gets enough sunlight. If you don’t get enough sun or have a condition that makes it difficult for your body to use the vitamin D it makes, that’s when you may need a supplement. But check with your healthcare provider (HCP) first!
2. Vitamin D is needed for calcium absorption
Also known as calciferol, vitamin D’s main job is to help your body absorb calcium. In fact, we can only absorb calcium — a nutrient you must have for healthy bones — when we have enough vitamin D.
3. Vitamin D is good for women’s brain health
A recent study suggests that higher levels of vitamin D may lead to improved memory and cognition for women. This hasn’t been fully proven yet — but it can’t hurt to make sure you’re getting enough vitamin D just in case.
4. A vitamin D deficiency is a serious problem
Having low vitamin D levels is called a vitamin D deficiency. Since our bodies can’t absorb calcium without the help of vitamin D, people without enough vitamin D in their body lose bone density and are at an increased risk for broken bones. They’re also at risk for developing osteomalacia, a disease that softens the bones and makes them painful, and osteoporosis. Osteoporosis is a disease that weakens your bones and increases your risk for broken bones. In the United States, eight out of 10 osteoporosis patients are women.
Read more about osteoporosis >>
Symptoms of a vitamin D deficiency include:
People with darker skin have a higher risk for vitamin D deficiency because it’s harder for skin with more melanin to turn sunlight into vitamin D. Adults over the age of 65 and people with homebound lifestyles also have a higher risk of having a vitamin D deficiency. In addition, some medications like laxatives, steroids and cholesterol-lowering drugs, can lower your vitamin D levels. Certain diseases, like obesity, Celiac disease, Crohn’s disease, kidney disease and liver disease, can put you at risk for a vitamin D deficiency as well.
5. How much vitamin D you need can vary
iStock.com/happy_lark
The recommended daily amount (RDA) of vitamin D is 600 international units (IU) for healthy adults ages 19-70, but those over the age of 70 need a little more: 800 IU. You may need to take more if you’re already vitamin D-deficient or have another health condition, but always check with your own healthcare provider to find out how much vitamin D you need.
6. You can get vitamin D through food
There aren’t many foods that naturally contain vitamin D — salmon, tuna, mackerel, beef liver, cheese and egg yolks are the notable exceptions. But, there are also foods that have been fortified with vitamin D, like cereal and milk, to help us get what we need.
7. Getting vitamin D through food works just as well as getting it through the sun
UV rays help your body make vitamin D, but they can also cause skin cancer. Most of our sunscreens are built to block UVA and UVB rays, so, unfortunately, using sunscreen can decrease vitamin D production.
But don’t throw your skincare to the side — it’s extremely important to prevent skin cancer with thorough sunscreen use. And the good news is that vitamin D from food and from sunlight work equally well in our bodies, so you’re safe to get what you need through both sun exposure and your diet.
8. You can get vitamin D through supplements
iStock.com/Lyalya Go
Supplements are a way to get vitamin D if you cannot get it through your diet or sun exposure, or if you have a preexisting condition, like osteoporosis, and need more of it.
Many vitamin D supplements are made using sheep’s wool, but plant-derived alternatives do exist for people with dietary restrictions.
But it’s important to note that the New England Journal of Medicine published a study last month that found that taking vitamin D did not lower the risk for broken bones in healthy adults. Plus, vitamin D supplements, when taken in extreme amounts, can be damaging to your health.
9. You can overdose on vitamin D
Vitamin D is a fat-soluble vitamin. That means extra vitamin D will be stored in our fat if we have more than what we need.
A vitamin D “overdose” is formally called vitamin D toxicity or hypervitaminosis D. When we have far too much vitamin D in our systems, calcium can build up in our bloodstream (a condition called hypercalcemia), causing nausea, vomiting, weakness, frequent urination and possibly kidney and bone problems. You have to take an extremely high amount of vitamin D daily for a couple months to be at risk for this condition. The British man mentioned above took 150,000 IU of vitamin D daily for a couple months.
Worried you might be getting too much vitamin D from sunlight? Don’t worry, that’s impossible. Once our body has created enough vitamin D, sunlight destroys the extra. And, there isn’t enough calcium in foods (even in calcium-fortified foods) to cause this kind of imbalance.
The only way to overdose is through taking vitamin D supplements. That’s why you should always check your supplement label to see how many IU of vitamin D they contain and check with your HCP about what you need. Anything that seems too over the top — like vitamin D infusions or supplements claiming to cure all your ailments — is probably too good to be true.
10. Getting vitamin D can be fun
Vitamin D is an anti-inflammatory antioxidant that supports your immune system, muscles and brain cells.
All those long words make getting vitamin D sound super serious. But getting vitamin D doesn’t have to be a chore. Taking a walk outside or trying a new salmon recipe are great ways to protect your bone health — and your overall well-being too.
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Schizophrenia and the people living with it are highly misunderstood. The name itself is misleading: Schizophrenia means “split mind” in Latin, but the illness doesn’t cause “split,” or multiple, personalities.
One in every 100 people — approximately 2 million individuals in the United States alone — is living with schizophrenia, a condition that can significantly impact daily life and well-being.
Here’s what you should know about schizophrenia.
Schizophrenia is a mental disorder that can cause hallucinations, delusions and disorganized movement and speech. It interferes with thinking and motivation to a degree that can be disabling. These symptoms, which are features of psychosis (losing touch with reality), differ among people in severity and frequency. People are usually diagnosed between the ages of 16 and 30, and women tend to have a later onset than men. Early, consistent treatment eases symptoms, while stress, alcohol and illegal drugs tend to bring on or increase the intensity of symptoms.
Despite often being portrayed as violent, people with this illness aren’t any more violent than other people — in fact, they may be more vulnerable to being targets of violence.
While schizophrenia has no known cause, studies have linked genetics, substance use, brain injury and stress with the appearance of symptoms.
Rates of schizophrenia don’t vary greatly across the world. About 1% of the population live with the mental illness, and women and men are equally affected. In the U.S., around 2 million people, or 1 in 100, are believed to have schizophrenia .
Schizophrenia is often misdiagnosed and tough to detect early. Its first warning signs are also symptoms of other mental illnesses, such as depression, substance use or bipolar disorder. The Schizophrenia & Psychosis Action Alliance recommends consulting a mental health professional if you notice drastic behavioral changes in a loved one. Early diagnosis and prompt treatment can improve outcomes.
Early signs of schizophrenia can include:
Later-stage symptoms of schizophrenia fall into three categories:
The age of diagnosis and symptoms of schizophrenia can differ for men and women. Schizophrenia tends to present at an earlier age in men — in their late teens to mid-20s — while symptoms in women usually show up in their late 20s and early 30s.
Late-onset schizophrenia, which presents after age 45, is more common in women. Some studies suggest that this is explained by the declining levels of estrogen during perimenopause and menopause. Symptoms of late-onset schizophrenia can include severe paranoid delusions, visual and olfactory (smell) hallucinations, and tactile hallucinations that can feel like bugs crawling on the skin.
Overall, women are more likely to experience the emotional instability that can come with any type of schizophrenia. Symptoms can include:
Family and friends can play a critical role in the diagnosis of schizophrenia because people with this mental illness are often unable to recognize they have it. Identifying the disease and starting treatment greatly improves a person’s odds of reducing psychotic episodes and successfully managing the illness.
Unfortunately, there is no single test that can diagnose schizophrenia, but a mental health professional can diagnose the condition by watching and evaluating a person’s symptoms over the course of six months. During this time, the medical team will rule out other possibilities, such as other mental illnesses, substance misuse and brain tumors.
A primary care physician can help refer you to a mental health specialist. For the first appointment for you or a loved one, it will help to prepare:
There’s no cure for schizophrenia, but there are treatment options that can reduce or control symptoms, prevent future psychotic episodes and improve a person’s daily functioning. There are several antipsychotic medications available as well as newer treatments. One of these newer treatments is a recently approved muscarinic agonist, which means that it stimulates certain types of receptors in your body. This is the first medicine of its kind, and it takes a new approach to treating schizophrenia symptoms while avoiding burdensome side effects associated with other antipsychotics. Some medications are taken by pill daily, while others can be given by injection once or twice a month. The prescribing doctor’s goal is to find the medication that controls a person’s symptoms best at the lowest possible dose.
Medication should be taken as part of a comprehensive plan that includes social support and therapy. Examples of these include talk therapy, vocational and social skills training, and employment and education services. People who coordinate their medical care with these supports are known to have fewer acute episodes and hospitalizations.
Other factors that contribute to better quality of life for people living with schizophrenia include proactively managing triggers and stress, maintaining good sleep habits, avoiding alcohol and drugs, and prioritizing social connections.
One of the challenges in treating schizophrenia is ensuring continuity of care. This includes supporting people in consistently taking their medications and accessing vital services. A key factor is that psychosis can alter perceptions of reality, making it difficult for individuals to recognize their condition or the need for treatment. This, and other factors, result in around 1 in 2 people with schizophrenia discontinuing their treatment — a statistic that illustrates why the average schizophrenia patient’s life expectancy is shortened by an average of 28.5 years.
Another barrier to treatment is that there is a significant stigma surrounding schizophrenia because it’s often misunderstood, which may be partially due to how it has been portrayed in mainstream media. The stigma can come from outside but also from within, and any stigma — regardless of the source — can prevent people from seeking medical help and continuing with treatment.
The financial toll of schizophrenia can also be steep. Direct healthcare costs represent part of the financial burden, while factors such as being unable to work and having complex social service needs make schizophrenia more expensive than other chronic medical conditions.
Insurance can also create barriers to accessing treatment. Antipsychotic medications are covered under Medicare Part D, Medicaid and most private health insurance policies, however, even with coverage, the specific drug you need may not be covered by your plan — or even if it is, depending on what tier level it is, it could still be expensive.
Also, many insurance companies use utilization management programs, which apply cost management tools such as step therapy and prior authorization for complex conditions such as schizophrenia. Step therapy requires that you try and fail certain treatments before others are covered by your insurance. And prior authorization requires that you get permission from your insurance company before it will pay for it. This can lead to people being forced to try a number of treatments that don’t work for them or being stuck with older medications because newer ones are more likely to require step therapy and prior authorization. These extra requirements can keep people from getting the medication or treatment they need in a timely manner — or even at all.
Lack of access to treatment can lead to increased rates of emergency room visits, hospitalizations, imprisonment and experiencing homelessness among people with schizophrenia.
Still, the vast majority of people with the illness are not homeless, and live with family, in group homes or independently.
Although schizophrenia is an incurable mental illness, it can be managed successfully with a combination of medication, therapy and social support, enabling people living with schizophrenia to lead lives full of hope and dignity.
American Psychiatric Association
Current Clinical Trials for Schizophrenia
National Alliance on Mental Illness
National Institutes of Mental Health
Schizophrenia & Psychosis Action Alliance
This educational resource was created with support from BMS, a HealthyWomen Corporate Advisory Council member.
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For years, juice cleanses have been marketed as the ultimate detox, promising clearer skin, rapid weight loss, and a squeaky-clean digestive system. However, recent scientific findings suggest that these liquid-only diets may be doing more harm than good when it comes to your gut microbiome.
“The majority of juice cleanses impact gut health negatively. They can cause bowel habit irregularity and even precipitate inflammatory bowel disease, as the gut microbiota is disrupted due to the lack of fiber in these cleanses. And we see patients all the time whose irritable bowel syndrome worsens after they’ve embarked on a juice cleanse,”
— Fazia Mir, MD, American Gastroenterological Association Spokesperson, Clinical Assistant Professor at the University of New Mexico
The U.S. National Center for Complementary and Integrative Health reports there’s little evidence to support juice cleanses for eliminating toxins from the body. Additionally, some juices used in detox protocols aren’t pasteurized or treated to kill harmful bacteria, potentially exposing individuals to toxigenic E. coli, Salmonella, hepatitis A, and Cryptosporidium.
Moreover, juices made from high-oxalate foods — like leafy greens and beets — can pose a risk for individuals prone to kidney stones, making juice cleanses even riskier for some.
Your gut is home to trillions of microbes that aid digestion, regulate the immune system, and even produce serotonin. A healthy microbiome thrives on diversity and fiber, both of which are sorely lacking in juice-only diets. Fiber, found in whole plant foods, feeds beneficial bacteria and promotes microbial balance.
If you’re looking to reset your gut, skip the liquid fast. Focus on nourishing your microbiome with real food:
Juice cleanses offer a quick-fix feeling, but they often come at the cost of gut health. Instead of starving your body, nourish it with whole, fiber-rich foods that support your natural detox systems — your gut, liver, and kidneys. Trust your body — and feed your microbes.
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Disclaimer
The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
As told to Jacquelyne Froeber
I moved to Manhattan in my early 20s for a job in television production. I worked as a producer for shows on ABC News and Showtime, and I loved the fast pace of the job and the city. Between work and friends, I was constantly on the go and there was never a shortage of fun things to do.
But everything changed when I was 26.
I started having joint and muscle pain I couldn’t explain. My fingers and toes were constantly tingling — like they’d fallen asleep — but I had trouble sleeping and terrible brain fog.
One afternoon, I felt good enough to walk across the Williamsburg Bridge to meet a friend, but afterward, my whole body felt like it was on fire. My lymph nodes bulged out of my neck, and my throat was so sore I could barely swallow. I knew something was wrong.
The first healthcare provider (HCP) I saw ordered a bunch of tests but couldn’t find anything that would explain my symptoms. He referred me to different specialists who all said the same thing: We’re not sure what’s wrong with you. There were times when an HCP thought we were close to a diagnosis, but it never checked out.
Months into the rotation of referrals, I had an appointment with a well-known neurologist, and I crossed my fingers that he would have answers.
“Do you have a boyfriend?” he asked.
I paused. Not a question I was expecting. “Not right now,” I said.
“All your symptoms would get a lot better if you had a boyfriend,” he said. “Women your age need to have boyfriends.”
I was shocked and chuckled uncomfortably. I figured he was making a bad joke on the way to a diagnosis. But it turned out that a boyfriend was his real solution.
I left the appointment visibly shaking. I wondered how, in 2014, a woman seeking medical help for an unknown health condition could be treated so poorly. Years later, I would learn that women are significantly more likely to report not being taken seriously by medical evaluators — a pattern that extends far beyond just one bad doctor.
Unfortunately, Dr. Boyfriend wasn’t the last HCP who didn’t take me seriously, and my symptoms only got worse. I eventually had to quit my job to see HCPs full time.
Around the ninth misdiagnosis, I realized that if I didn’t find out what was going on with me, no one would. For months, I spent what little bit of energy I had pouring over information on the internet and in medical journals.
One day, I read about post-exertional malaise (PEM), which is when symptoms like pain, fatigue and brain fog flare up after physical, mental or emotional activity. My mind immediately went to the time I crossed the Williamsburg Bridge, and I cried. I knew I had my diagnosis. PEM is a hallmark symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A complex, severely debilitating physiological illness that can affect the entire body.
There were two specialists in Manhattan and both of them diagnosed me with the condition. I was relieved to stop the carousel of random HCPs but devastated to learn that there were no FDA-approved treatments or medications for ME/CFS.
It was also extremely frustrating to finally have a diagnosis, but when people looked it up, all they’d see was “chronic fatigue syndrome” and think I was just tired. I’d send people medical articles and try to explain the wide range of symptoms — electric shocks in my arms, severe brain fog that felt like my mind was shutting down — but there were no resources out there to accurately describe what was happening or how complex the condition really is.
In 2016, not long after my official diagnosis, I had a massive “crash” or flare up of symptoms. My lymph nodes and throat were swollen and painful, and my legs stopped working properly — like they had turned into JELL-O.
I knew something was happening and it wasn’t good. I hailed the first cab I saw outside of my apartment and went straight to my parent’s house in Connecticut.
I’d developed very severe ME/CFS and could no longer do the simplest movements. I couldn’t wiggle my toes or bend my fingers. Even the sucking motion of a straw was a struggle, and the smallest sip of a smoothie took everything out of me. My parents hired caretakers to help me with basic tasks like brushing my teeth and turning my body so I didn’t get bed sores.
The worst part was that I lost the ability to speak. I was trapped in my own body without a way to communicate — a hell I wouldn’t wish on anyone’s worst enemy. I suffered every moment of every day, but losing my voice was torture.
With no FDA-approved treatments available, I was given numerous off-label medications to see if anything helped improve my condition. I knew some people with ME/CFS see improvements with off-label treatments — but not everyone does.
Thankfully, after 2½ years of being completely bedbound, I started showing improvements. I gradually started speaking again and progressed to simple quality of life tasks like using an iPad.
And after finally getting my voice back, I knew that I wanted to use it to bring awareness to this poorly understood condition. In March 2024, I launched #NotJustFatigue — an educational resource for everyone from government officials to friends and family to learn about ME/CFS and the stigma surrounding it. Decades of misinformation have unfortunately taken a toll on how we view this debilitating, chronic illness. It wasn’t long ago — 2017 — that the Centers for Disease Control and Prevention recommended exercise and cognitive behavioral therapy as treatments for ME/CFS. They’ve since taken the recommendation down, but no progress has been made regarding treatment options.
More recently, #NotJustFatigue partnered with researchers to release the Invisible Illness Report — the first comprehensive survey examining the economic impact of ME/CFS on individuals and families. The survey found what I would have guessed: Almost all people (94%) with ME/CFS saw some interruption in their professional lives. And 1 in 4 said their diagnosis forced them to leave the workforce entirely.
People with ME/CFS that were able to work retained only 57% of their pre-illness income on average. Women were hit particularly hard, maintaining just 49% of their previous earnings compared to 63% for men. Perhaps most telling, nearly half of women reported not being taken seriously by disability evaluators, compared to a third of men.
It’s because of these tangible ripple effects of ME/CFS that I’ve been meeting with congressional staffers to advocate for government funding for clinical trials. As a person who’s been bedbound for nine years because of the condition, I know hope is what keeps you going, and what we really need are clinical trials. We need to know the people who’ve improved, why they’ve improved and if other people can improve in the same way. There are millions of people living with ME/CFS. Anyone can get it at any time, and women are three times more likely to develop the condition than men.
It’s been almost a decade since my diagnosis, and I’m beyond ready for progress. It’s frustrating to think that if the government had invested in finding treatments for the disease, maybe my life would be different. But my focus now is taking it day by day and holding onto hope for the future. Hope that doctors will be fully educated about ME/CFS in medical school and there will be specialists and medical centers and treatment options for people living with the disease. It’s what everyone with ME/CFS deserves.
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Our Real Women, Real Stories are the authentic experiences of real-life women. The views, opinions and experiences shared in these stories are not endorsed by HealthyWomen and do not necessarily reflect the official policy or position of HealthyWomen.
Alice Connors is a popular Model, and a Social Media Influencer famous for her beautiful and stunning pictures and short videos that she posts on her social media handles like Instagram, TikTok, etc. Alice came into the limelight after she started modeling with popular modeling agencies and brands.
She has competed in numerous modeling competitions and has been making waves in the social media world. With thousands of followers on her various social media handles, she is making a name for herself. From appearing in various fashion shows to featuring in advertisements, Alice Connors is truly making a mark in the modeling world. Alice Connors was born in Bristol, England to Mr. James Connors and Mrs. Ann Connors. Alice’s nationality is British.
Alice Connors is a true example of beauty, fitness, and health. Her height is 5’2 making her the perfect size for any modeling project. She has a gorgeous face and a stunning personality to top it off. This stunning model has worked hard to maintain her physical fitness and overall health in order to be successful in the modeling world. She follows a strict diet and exercise regime to ensure that her body is able to endure the rigors of modeling. She also makes sure to get plenty of rest and relaxation in order to stay looking amazing.
Alice Connors is an amazing student who has achieved a remarkable amount in her lifetime! She studied at Ruislip High School, and then further specialized in Psychology at university. After completing her studies, she achieved a high level 6 (honors) in Psychology and then went on to study the human brain and body language in further detail. Alice also qualified in law as a paralegal executive and in criminology. Her qualifications didn’t stop there though. She also achieved level 3 qualifications in Psychology, and other qualifications in Makeup Artistry, Tissue Viability Nursing, Psychotherapy, and Counseling, Business, Depression Counseling, and even a GCSE in Geography. To top it all off, Alice could speak multiple languages like English, Spanish, and Greek! This is truly an impressive track record and Alice has clearly worked hard and achieved her goals. The most recent study of her is Quantum Science.
At the young age of sixteen Alice Connors already had an impressive professional career: she was working in business and computer coding. Little did she know that this would launch her into the limelight. One fateful day, she was discovered by a modeling director who immediately saw her potential and invited her to compete in a beauty pageant. Alice accepted and soon found herself on stage, competing in her first-ever modeling event.
To everyone’s delight, Alice was awarded the title of winner. She was presented with four sashes, featured in a magazine, and given a modeling contract. Alice didn’t let her newfound fame go to her head. She still kept up with her work in the business industry and found time to do press interviews and photo shoots. One of the most memorable of these is in Piccadilly Circus.
Alice Connors is a true inspiration and testament to the fact that no matter how young you are, you can still make your dreams come true. At 18 years old Alice was an aspiring model when her modeling images were noticed by Miss World Classic. She took the opportunity and performed on stage at the Miss World Classic show, making it her very first bikini performance.
Thanks to her talented performance, Alice was selected as a model to perform at the Miss Motors Modeling show. She went on to win and was invited to fly to the Formula 1 Grand Prix in Monaco. After the show, Alice took some time away from the modeling industry to focus on her studies. Her success as a model has certainly been inspiring, and we can all learn from her determination and drive.
After her short break from the modeling industry, Alice returned and performed in a theme-wear modeling event. At this event, her outfit by choice was inspired by the Victoria’s Secret Modelling show. Dressed as a white angel, with large wings. Alice won and was invited to the world championships. Alice competed in the bikini world championships. The competition was huge! Models from all around the world competed. After two years of perseverance and competing in the World Championships. Alice finally achieved something she had worked incredibly hard for and she won. Attained not just one but two! Golden trophy’s on her night of winning. She received her professional athlete card, and become a world-champion bikini model.
The audience grew even larger, after the world championships, and the modeling event after was yet another international show that took place in the 02 arenas. She performed on stage in the 02 arenas with thousands watching, including press and red-carpet interviews after.
With the huge shows back to back and the intense preparations, Alice decided to take a short break. And work on something that she was just as passionate about, her education. She started to study at the University for her Degrees.
Alice studied intensively for 2 years. She achieved multiple qualifications and returned to the modeling industry as the head Judge of a show she once performed at. Alice was then published in over 25 magazines and websites internationally. The press then gained interest in Alice’s qualifications. Alice was called for multiple press newspaper articles on her education. The story appeared in newspaper articles around the world. Alice then competed in Maxim a worldwide famous competition.
Alice still continues her education. And will be representing England in an international beauty pageant that will air on television.
Some of Alice’s many publications:
This year, Alice Connors is fully committed to living with purpose and seizing every moment. Her mission is to make a real difference in the lives of others. She will start by running a marathon, using it as a catalyst to raise funds for those in need. Her philanthropy will continue to impact hospitals, support young children, and help those facing challenges.
She wish to write powerful, transformative books—ranging from health and diet to psychology—that will inspire and empower others to take control of their lives and well-being. This year, she will also launch her own model show, giving young talent the opportunity to break into the industry and pursue their dreams. She is determined to make 2025 a year of transformation, growth, and meaningful impact.
Women Fitness President Ms. Namita Nayyar catches up with Alice Connors an exceptionally talented Supermodel, Influencer and a world-champion bikini model here she talks about her fitness routine, her diet, and her success story.
Where were you born and had your early education? Later you decided to pursue modeling as your own profession. This later propelled your career to the height where you won the titles Miss Europe United Kingdom in the Miss Europe beauty pageant Tell us more about your professional journey of exceptional hard work, tenacity, and endurance.
On 14 November 1996, I was born in Bristol, England to Mr. James Connors and Mrs. Ann Connors. When I was very little I started dancing and performing I would attend professional classes. My mother and father would have all of my dresses custom-made as well as my jewelry. My first ever performance in front of an audience was age 5 when I was selected to play an angel of Christmas. After my early education I moved to London where I furthered my education. I started studying languages and business. And then further specialized in Psychology at university.
After completing my studies, I achieved a level 6 (honors) in Psychology and then went on to study law.
When did you start your modeling debut ? Tell us more about this first time when you faced the camera and your experience working in that modeling campaign.
At 17 I was working in business and computer coding, I was invited by a pageant director to compete in a beauty pageant. I competed and I won and was crowned I was presented with four sashes, won a modeling contract. I still kept up with my work in the business industry and found time to do press interviews and photo shoots.
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The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
HealthyWomen shares the concerns of the American College of Obstetricians and Gynecologists and other medical associations about the health and safety of pregnant people and newborns in the United States following the recent announcement that the U.S. Department of Health and Human Services (HHS) will no longer recommend Covid-19 vaccination during pregnancy. This decision may significantly impact how pregnant people make healthcare decisions and undermines their ability to make informed choices for themselves and their families.
Covid-19 remains a serious threat. Getting a Covid-19 infection during pregnancy puts patients at higher risks for severe illness, and newborns rely on maternal antibodies for protection in their early weeks of life. The removal of this recommendation creates confusion, despite clear and consistent scientific evidence supporting the safety and efficacy of Covid-19 vaccines during pregnancy.
This abrupt departure from established guidance may cause people to forgo vaccination or lose access to the vaccine because of changes in insurance coverage — a particularly troubling outcome for those already facing health disparities.
The science has not changed. A Covid-19 infection during pregnancy can be catastrophic, and vaccines are a proven safeguard. This policy shift undermines confidence in vaccination at a time when trust and access are essential.
HealthyWomen urges HHS to reverse this decision and uphold evidence-based guidance that protects the health of pregnant people, newborns and their families.