Think back to 1993. What do you remember?

Seeing the movie Jurassic Park on the big screen? Listening to Whitney Houston’s “I Will Always Love You” on the radio? Surfing the World Wide Web for the first time?

1993 was also the year the government began requiring that the National Institutes of Health include women in medical research.

Yep, you heard that right. It was just 32 years ago that the NIH Revitalization Act passed mandating that women be included in clinical studies and other research.

The landmark bill was a huge step forward, propelled by women’s health advocates. But still to this day, only 8% to 11% of the NIH grants currently fund women’s health.

This detail was not lost on Liz Powell. After working as an attorney, lobbying in Congress for 25 years and running a bipartisan firm, G2G Consulting, she started Women’s Health Advocates (WHA) in 2024. WHA is a bipartisan coalition with a mission to help shape the legislative process, educate government decision-makers on women’s health and secure funding for advancements in women’s health.

We talked with Powell and Elizabeth Garner, M.D., MPH, a founding member of WHA, about the organization’s first year and how they’re keeping the spotlight on women’s health.

This interview has been lightly edited for clarity and length.

HealthyWomen: Liz, can we go back to the beginning and talk about why you started Women’s Health Advocates?

Liz: I’ve done a lot in the health space and try to bring life science innovations to market by working with the government to accelerate access to government funding.

I would have a couple clients here and there that were touching on the woman’s health space. Every time you get a new client, you learn about different gaps where unmet needs need solutions. I realized this is not just a one off here and there — there’s a real pattern going on. So I helped organize these two new coalitions and efforts to do better advocacy and education on women’s health and realized we needed something as the umbrella for all of it. And that’s what Women’s Health Advocates is.

We launched in February of this year. But like I said, it’s the culmination of work of many of us, including doctors — Dr. Garner has been a huge advocate in women’s health — and there have been many, many people working really hard in the women’s health space for a long time.

What Women’s Health Advocates is trying to do is bring all that together for advocacy, all aspects of the ecosystem. So, whether you’re a researcher or clinician, CEO, entrepreneur, investor, patient — no matter where you are in this ecosystem, there’s a place for you at Women’s Health Advocates.

We want to change laws, we want to increase funding, work with the government and make sure politicians understand the impact their decisions have on the health of women.

HealthyWomen: Dr. Garner, what was it about WHA that made you want to get involved?

Elizabeth Garner: Most of it was that I really like Liz (laughs). We’ve known each other for a while.

Everything she said is what I was thinking — and going through. First, as a women’s health physician, I was frustrated by the lack of solutions for so many conditions like endometriosis and polycystic ovary syndrome (PCOS) and fibroids, and you can just keep going on and on.

I saw women just really suffering — and their families. I felt like we just needed so much more. And then I left clinical medicine because I was hoping if I got into industry, maybe I’d have a bigger impact. And unfortunately what I found was that we don’t have the solutions I wanted as a physician because there just hasn’t been the research.

Modern medicine was really developed for male physiology, and it was assumed that women were small men. Because of that, we don’t actually understand the fundamental science that’s underlying all of these conditions. And that hurts from a therapeutic standpoint but also from a diagnostic standpoint. So we don’t actually have good ways even to diagnose a lot of the conditions I’ve mentioned . Women go years before they know what’s wrong. We still don’t know why women are different from men in many ways.

That’s still going on and there’s been a lack of innovation, investment, etc in women’s health. That’s really why we want to bring anyone, everyone into this organization — meaning not just women but men. We have a lot of male supporters, but in terms of history, men have been the deciders of where dollars go when it comes to health, so over time, women’s issues haven’t been considered to be as important as men’s issues. By bringing this whole ecosystem together, we can really make a difference. And that’s why I joined.

HealthyWomen: Tell us more about the needs WHA addresses and anything noteworthy you’d like to spotlight.

Liz: I would say — putting on my lobbying hat — to be an effective lobbyist, to have tangible results, I want to jump onto a train that’s already moving. I want to do general education advocacy about the long-term gains that we need in women’s health. Well, that train is called appropriations.

Every year, the House and Senate have to do these appropriations bills. That, plus the National Defense Authorization Act, gets done every year no matter what. The appropriations is where we put a lot of focus, we lobbied our tails off and we got in there to get language and funding lines included in the appropriations bills, and we’re actually seeing results. Our success was a combination of my lobbying team, which is me and my folks at G2G Consulting, as well as the letter writing campaign.

We would draft letters for folks and got our grassroots advocates who are in all 50 states writing letters. We also organize Capitol Hill events, and we had our first event in April focused on Centers for Medicare and Medicaid Services (CMS) reimbursement discrimination because, on average, the same surgery performed on a female and a male patient has a 30% lower reimbursement rate if it’s a female patient.

Doing a congressional briefing opened a lot of eyes. A lot of people started to ask questions and want to work with us, so that’s great.

On May 21, we did the first-ever women’s health Capitol Hill Day where we addressed all of women’s health with great bipartisan turnout from members of Congress.

In July, we had our breast cancer Hill day. Every time we do these, we’re bringing advocates to Washington to share their stories to shape the legislative process. And the results that we’re seeing all came out in the summertime and showed that the language we had lobbied for, like the definition of woman’s health, which is conditions that solely, disproportionately and/or differently impact the health of women, head to toe throughout their lifespan, is actually in the bill on the house side.

Our funding request for a $30 million increase for the Office of Research on Women’s Health has been included in the Senate bill and in the House bill; it’s a $26 million increase. So, either way, that office is going to get an increase.

So, all those efforts are really producing results. We’ve still got a ways to go, but at least we’re seeing something in less than a year.

Garner: Liz is the policy wonk. I am so not and I’m learning, but just from my perspective, another thing I think that WHA is clearly doing is raising awareness.

As we go around the country, more and more folks are coming in and it’s amazing — because we know this stuff, but most people don’t. So, we talk about data around lack of innovation and NIH funding and all of that and venture capital funding. We’re doing a lot of education as well, and that’s really important and will help us as we continue to talk about policy.

HealthyWomen: What are the group’s goals for 2026?

Liz: We are heading into an election year, so that will be a big factor. Because we are not a nonprofit, we can engage in politics as much as policy.

We are going to be tracking what’s going on on the policy front. We’ll be doing more appropriations work next year. And then we’ll also be tracking the candidate, and candidates that are in what are called “persuadable districts,” where the person wins by anywhere from 1% to 5%. Those are persuadable districts that could flip either way. And that’s where there’s the most power in shifting and making women top of priority. So, we’ll focus on those — we’ll track those.

We really want to do a whole get out and vote for women’s health campaign. We’re already working with Beyond the Paper Gown on doing a whole series to educate people on women’s health issues and why it’s important to go out and vote.

Garner: I think the awareness part, as I was mentioning, is going to be really important but also homing in on our strategy going forward is going to be really important to keep moving forward.

HealthyWomen: How do supporting organizations like the Society for Women’s Health Research and HealthyWomen play an important role in advancing these goals?

Liz: It’s critical. The Society for Women’s Health Research is doing lots of great advocacy work, but they are nonprofit so they are limited in how much they can do. And so a lot of times that we team up when they’re working on something and we can amplify it.

We’ve signed on to letters that they sent to Congress, for example, and we’ve written letters that they’ve signed on to. There’s a lot of very supportive partnership and collaboration that happens.

Garner: There’s just no one organization that can do this alone. And so we talk a lot about bringing together the entire ecosystem so everyone is working together.

HealthyWomen and SWHR provide women with information and safe spaces for women to tell their stories. And that’s what drives people. That’s what drives policymakers, investors and other stakeholders to take action when they hear those stories.

HealthyWomen: How can readers get involved?

Garner: We’re doing events around the country, so we definitely invite people to come to an event and see what’s happening and learn and meet like-minded people.

Liz: People can also sign up on our website to join our community — I send legislative updates and a lot of insider information most people don’t have with women’s health always being the focus.

HealthyWomen: Is there anything else you’d like to add that we haven’t talked about?

Garner: I have one thing that I think it’s always important to talk about, and that’s diversity. We are a very diverse organization. And it’s so important because, for all the issues that we’ve been talking about, they are always worse for women of color, for other underserved communities and so on. So, we’ve got to make sure that, as we go along, we’re including everyone in all that we do.

Medically reviewed by Armine Smith, M.D.

Let’s face it, the holiday season always delivers a contradictory blend of magic, wonder and overwhelm, and a pair of slipper socks may not take the edge off your laundry list of to-dos.

Finding time to relax and recalibrate before the decorations are packed away may seem impossible, but the better you treat yourself, the more you can inhale happiness and exhale burnout.

We’ve created a list (and checked it twice) of 12 ways to practice self-care during the holiday countdown. From mini indulgences to healing experiences, prioritizing self-care every day, no matter how small, will keep you present and balanced and help you manage festivity overload.

1. Holiday hosting, baking and gifting are times to connect with friends and family and create meaningful memories. But all that doing in such a short period of time can have us running close to E on energy.

A session with a Reiki practitioner or using a sound healing app can help clear emotional blocks, alleviate stress and fill your tank.

International Association of Reiki Professionals, Soaak

2. Some people feel a sense of accomplishment checking off tasks in a planner, but for others it can cause anxiety, especially when your day doesn’t fit into neat little boxes.

Instead, mindfulness and manifesting journals focus on the big picture and are designed to help you reflect on your goals and overall well-being. Light a candle, pick up your favorite pen and set your dreams in motion.

The Growth Guided Journal, The Human Being Journal

3. There’s shopping, and then there’s holiday shopping. If the lines, parking and sheer exhaustion of finding the right gifts is weighing you down, the last thing you want to do is try on clothes in a dressing room.

What would it be like to have a stylist dress you during the holiday season? If this sounds like a dream but out of your price range, we have good news. Online personal styling services like Stitch Fix take the guesswork out of holiday dressing, have no fees and don’t require a subscription.

4. We know that ample, quality sleep is essential for our physical, mental and emotional well-being. Since the holiday season never seems to slow down, making sure you’re sleeping soundly and deeply will help you feel refreshed the next day, no matter how many errands are on your calendar.

Sleeping in total darkness, disconnecting from digital devices and feeling comfortable in bed can help you reach your sleep goals.

Accuratex Cooling Sheets, Blissy Sleep Mask, Reacher Sunrise Alarm Clock

Read: Top 8 Healthy Sleep Habits >>

5. Are your toiletry bags in need of a makeover? If you’re traveling for the holidays, a new, smartly designed cosmetics case will make packing personal care products of all shapes and sizes a cinch.

Staying local? A new makeup bag for trips to the office or the gym feels like a fresh start without the broken zippers and exploded eyeshadow stains.

Lola Makeup Bag, Terra Hanging Toiletry Bag, The Foldie Toiletry Bag

6. Ho, ho, oh! ’Tis the season for giving … yourself some love. Vibrators and other sex toys — solo or with a partner — can be great tools to help you achieve an orgasm, which can lower your heart rate and send a surge of dopamine and serotonin (feel good chemicals) through the body. So, having an orgasm is a pretty powerful stress reliever. If nothing else, do it for science.
7. If you love fancy coffee, but don’t always have time to grab your favorite hot beverage from your local roasters in the morning, stop in and purchase a few bags of your favorite blend. Most coffee shops that sell beans are happy to grind them for the type of coffee equipment you use.

Latte lover? Grab some holiday creamers or a frother for a barista-worthy coffee you can make on the fly and enjoy anytime. Pair it with a short visual meditation for a fully relaxing coffee break.

Bodum Pour Over Coffee Maker, Instant Pot 4-in-1 Milk Frother, Milk Frothing Thermometer

Read: Hot Stats on Warm Bevvies: Can Hot Beverages Help with Healthy Aging? >>

8. Is the holiday hustle getting really heavy? Try taking a break with a visit to a museum. This calming excursion requires you to silence your cell phone, walk at a snail’s pace and focus your mind on creativity, innovation, history and culture in contrast with the frenetic go-go-go of the holiday season.

Take your time, sketch or write in a notepad, or simply sit for a while and enjoy the view. And, if you want, you can pick up some stocking stuffers at the gift shop, crossing one item off your to-do list.

9. There are few things as satisfying as flinging off your bra at the end of the day and throwing on cozy clothes. But, no matter how comfortable they may be, letting go of clothes with holes and rips is a legitimate act of self-care. Replace them with a spa-worthy robe and other comfy staples for the win.

Kyrgies Wool Slippers, Organic Turkish Waffle Robe, UNIQLO Wide Sweatpants

10. Everyone’s up to their eyeballs in holiday events and planning, but spending time with close friends is an elixir for stress and remembering what the holidays are all about: joy.

Meet up for coffee, hop on a Zoom call with a remote bestie or invite your crew over for a girl’s night in: DoorDash, fuzzy socks and spa masks are mandatory.

11. A recent study revealed that spending time outdoors at night has significant mental health benefits. Bundle up and find a serene, quiet place to be calmed by the infinite beauty of the night sky. If you’re in an urban area, head up to your rooftop with a blanket and pillow and a mini telescope attachment that fits onto your smartphone.

Celestron NexYZ, Monocular Telescope for Smartphone, Night Sky App

12. When you’re done with your Dear Santa letter, pen yourself a love letter. It might sound cheesy, but expressing gratitude for yourself is important. All it takes is a quiet room, a notepad or journal, and a writing utensil to reflect on your own self worth. Remember, the holidays would be nothing if they didn’t have you.

There was a taste of fall in the air. The musty scent of leaves hung heavy as they crunched beneath our feet. October days were getting shorter. And the holidays were looming like shadows in the late afternoon sun. I regarded the soon-to-be festive season with an unsettling feeling of impending doom.

This was an autumn like no other. My husband Joe and I were headed to my outpatient physical therapy appointment. My legs were stick thin and I walked like a newborn fawn on wobbly, unsteady limbs. My weight had dropped to 115, and my hair was falling out. I lived an anxiety-riddled existence. Crying every day and waking up in a panic after a fitful sleep filled with horrendous nightmares.

Five months earlier, on May 22, 2021, my colon perforated from undiagnosed diverticulitis, a serious infection. I went into septic shock, my immune system’s dysfunctional way of fighting the infection, and my organs started to fail. Our world was rocked in an instant as I was flown by helicopter to shock trauma for emergency surgery in Baltimore. The doctors were doubtful I’d make it.

Surprisingly, I did. A large part of my colon was removed, and a temporary colostomy was placed by pulling a small piece of intestine through my abdominal wall to create a stoma to get rid of waste while my intestines healed. My colorectal surgeon, a brilliant physician with skillful hands, said she would reconnect everything by doing a colostomy reversal in December. The nurses marveled over my neatly stapled 10-inch incision that ran straight down my stomach and through my belly button. They said the stoma was “beautiful.” My surgeon had done amazing work, but I wasn’t sure about calling the stoma “beautiful.”

Jackie in shock trauma ICU after suffering from septic shock, 2021.

I spent over a month in the hospital and inpatient rehab. Only to be re-admitted again to drain a post-op infection shortly after I came home. I had to learn to walk again and brush my teeth. I had to adapt to the stoma. Sepsis left me drained and my muscles wasted away. I couldn’t pour a bowl of cereal and could barely sit up for more than 10 minutes at a time.

My nerves were shot. My family did everything they could to ease my mind, but they didn’t understand what was happening. I didn’t even realize I was suffering from PTSD and post-sepsis syndrome, a condition that affects about 50% of survivors, but no one knows much about. We suffer in silence. My mind had been overtaken by irrational fears of just about everything. I was terrified to have bloodwork done or my vitals taken. I started to emotionally detach from life itself. I was tuning out, just like the blank screen on the TV that I would stare at for hours.

The holidays, and my next surgery, were fast approaching. I was so sure that I wouldn’t survive the reversal that I booked the surgery for December 8to be sure I didn’t miss my youngest daughter Alexis’s 21st birthday on the 5th. I wanted Alexis to enjoy that milestone, just in case I didn’t make it.

Alexis, my other daughter Elise, and my son Joey and his fiancé Colleen, assured me they would handle the holidays. Meanwhile, I had a calendar full of “must-dos.” A colonoscopy, to check if everything was okay inside for surgery. Iron infusions, tons of bloodwork, cardiology clearances, pulmonology clearances and a physical. This surgery was no walk in the park. It would take several hours and was very complex. I also have several chronic, disabling conditions, including Hypermobile Ehlers-Danlos, POTS, Crohn’s disease and severe osteoporosis. I had a lot of pre-surgery boxes to check.

Come November, my husband suggested we go to a nearby lake and take walks as the afternoon sun was getting even lower in the sky. The leaves were really rustling now. The walks helped settle my mind a bit and strengthened my muscles for surgery. I continued with outpatient physical therapy. I was still very weak — and plagued by my mental demons of doom.

Thanksgiving arrived on a bright sunny November morning. Elise and Alexis helped their dad get everything ready. They made all the things — turkey, stuffing, potatoes and pie. Joey and Colleen brought more food and cookies. New memories were forming around me, just as savory as the meal. As we sat around the table, and the kids joked and laughed, I looked around intently and tried to take a mental snapshot and put the picture away in my heart. Just in case my fears came true.

Before Alexis left that weekend to go back to college, I gave her an early birthday present. A Pandora bracelet and a 21 charm, with her birthstone. Tears welled up in my eyes. I was convinced I’d never live to see her graduate, much less see her return home for Christmas break in a few weeks. I tried not to give away my fears, but I failed miserably.

Jackie and Alexis with Alexis’ 21st birthday charm bracelet, 2021

December rolled in with a crisp chill. I avoided listening to Christmas music. It was too wistful and sentimental, and it hurt my heart and a huge lump formed in my throat. Bing Crosby’s “You’re all I want for Christmas,” has always been a sore spot. My dad used to play it on the family stereo when I was little, and it makes me think of family who are no longer here. And now, I worried that it would be the last time I’d be here to hear holiday songs. Instead, I kept smooth jazz on the radio. Nice, neutral territory.

My nerves were fraught with tension and terror the morning of my surgery check-in at 5 a.m. in Baltimore at the same hospital. I almost escaped and ran out the front doors. My husband coaxed me back inside, and a registration staff member named Tatia came over and sat with me and held my hands. She gently prodded and asked what was wrong. I told her I was sure I was going to die in surgery. Tatia asked me about my kids, their careers and what had brought me there that morning. I gushed about my kids and then told her about the sepsis and my previous flirtation with death. She assured me I was very strong to have survived that, and I would survive this too. She came upstairs with us to the pre-op area and stayed until my surgeon arrived. It was like I had an angel looking out for me that morning.

When I woke up in the recovery room, the nurses gleefully announced that I had made it. I was on the other side! Just not “that” side. I was still on this planet, much to my surprise. I peeked under the covers at the small white bandage on the left side of my stomach where my stoma used to be. My surgeon said the takedown was a success, although it took a few days for everything to start working again. I spent eight days in the hospital, walking in the halls dragging my IV pole. Joe filmed my progress for Instagram. One of my nurses fashioned a makeshift sparkly pipe cleaner into a Christmas ornament and attached it to my IV pole. It was the most beautiful decoration I’d ever seen.

Jackie and her kids, Christmas 2021

The day after I came home, our son drove to Pittsburgh to bring Alexis home for break. The girls had insisted on waiting till I came home to decorate the tree. I was still frail and weak. But I was able to lie on the couch and watch them hang ornaments while playing the Christmas song guessing game with their dad. Alexis put on classic Christmas carols (the really old ones), and when the first few seconds of the song began, she’d ask her dad to name the artist. They had played this game for years.

My husband helped make a few purchases online, so we’d have something for the kids on Christmas morning. Elise had purchased a Fitbit way back in September so I could keep track of my steps as I continued my recovery. She always was more certain of my survival than I was. Joey and Colleen bought me a Wii Fit so I could workout at home on my off days from physical therapy. Alexis made the best meal, and it felt like we opened a new chapter. Waves of emotion erupted as I opened the gifts. I really didn’t need the gifts; my family was all I needed. It felt surreal. To still be alive. Like a dream. Our Christmas dream. And it was all I ever wanted that Christmas.

Resources

The Sepsis Alliance

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Celia Quansah is an English rugby sevens player who plays for Leicester Tigers Women. She was selected as a member of the Great Britain women’s national rugby sevens team for the 2020 Summer Olympics. Born at Twickenham, England. Born to a Ghanaian father and English mother, Quansah grew up in Twickenham. She participated in athletics, winning the long jump event at the 2011 School Games, and represented England internationally in heptathlon, competing at the British Championships against Jessica Ennis-Hill. Whilst at university, she took up rugby. After playing for six months, she was invited to join the England Sevens programme for 2018/19, and played for the winning Great Britain team at the 2019 Rugby Europe Women’s Sevens Olympic Qualifying Tournament.

She was selected as a member of the Great Britain women’s national rugby sevens team for the 2020 Summer Olympics. She was named in the England squad for the 2022 Rugby World Cup Sevens – Women’s tournament held in Cape Town, South Africa in September 2022.

Women Fitness President Ms. Namita Nayyar catches up with Celia Quansah – an exceptionally talented and accomplished English rugby sevens Olympic athlete. Here she talks about her fitness journey and the success story.

Namita Nayyar:

You were born in Twickenham, England. You participated in athletics, winning the long jump event at the 2011 School Games, and represented England internationally in heptathlon. While at university, took up rugby and after playing for six months, were invited to join the England Sevens programme for 2018-19, and played for the winning Great Britain team at the 2019 Rugby Europe Women’s Sevens Olympic Qualifying Tournament. This later propelled your career to the height where you have been at the top of English women’s rugby. Tell us more about your professional journey of exceptional hard work, tenacity, and endurance?

Celia Quansah:

I’ve always loved sport, growing up I would try anything I had the opportunity to. At primary school I was introduced to sports like tag rugby, cricket and athletics. I think being exposed to sport at a young age developed the competitive nature in me and I got so much enjoyment from it, which never went away really.

I started playing rugby because I was desperate for a new challenge, and felt like I wasn’t going to unlock my full potential in Athletics, but I said to myself I was only going to do it if I was going to play for England, I wanted to be the best, so that was in my head from the moment I picked up a rugby ball. It was a steep learning curve being thrown into an international setup with very little rugby knowledge, so that took a lot of confidence and hard work.

I picked up a lot of niggles (injuries) early on, as my body wasn’t used to the demands of the new sport, but after a year or so I was able to play freely and had a good stint being injury free. That was when I really saw my progression accelerate and I found myself playing on the world stage in front of thousands of fans in some of the biggest stadiums around the world, which are moments I will never forget.

In 2021, at the top of my game post Tokyo Olympics, I ruptured my first ACL. This was my first ‘big’ injury and it was devastating. When it happened, I remember laying on the pitch while the physio assessed me, and counting ahead 9 months (the average time it takes to return from an ACL injury) which took me to a week before our first match at the Commonwealth Games.

In that moment I knew I was going to do everything I could to get myself back for that tournament. After talks with my medical team to discuss the risks, we decided we would throw the kitchen sink at it, and against the odds, I returned to playing after 7 months and was selected for the 2022 Commonwealth Games. A dream comes true.

Unfortunately after a short 6 months back on the pitch, at the Cape Town HSBC World Series tournament, I was high tackled, and dislocated my other knee causing significant injuries including an ACL and MCL rupture and Meniscus tear. At first, my mindset was similar to my first ACL, ‘we go again’ I thought. But over time, this injury took its toll, I felt so hard done by and questioned a lot, why me? I struggled in a camp based program, to get the support I needed and wanted which affected me massively over time. I was however, extremely fortunate to have the support from external sources such as The RPA and The IRU.

After multiple scans, two surgeries, injections and countless physio and psychology sessions, I returned to playing on the HSBC World Series in February 2024 where I was able to start my journey back to loving rugby again. Still, 10 months later, I’m on that journey back to full confidence, full fitness and full enjoyment for the game, but I’m determined to get there.

Namita Nayyar:

It is a dream for a rugby player to play in the Olympics. You were selected as a member of the Great Britain women’s national rugby sevens team for the 2020 Summer Olympics. Tell us more about this spectacular achievement of yours?

Celia Quansah:

Being an Olympian has always been my ultimate dream, it sounds silly but growing up I knew I was going to make it happen. I did think it was going to be in athletics, but life took me on a different path. A lot of rugby players actually dream of playing in a World Cup, rather than an Olympics as that has traditionally been the ‘pinnacle’. However for me, the Olympics were always my dream and it still feels strange to be able to say I’ve achieved it.

Like anything, it becomes normal over time, but it’s really lovely when people remind you of how special it really is. When you’re in the elite sport bubble, things that aren’t that normal become normal, like being an Olympian? Haha. I am so, so grateful for the coaches who took a chance on me as a 21 year old heptathlete, and in 4 years, nurtured me into a player worthy of an Olympic shirt. It really was one of the best experiences of my life.

Full Interview is Continued on Next Page

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