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The theme for World Health Day 2025 is ‘Healthy beginnings, hopeful futures.’ This year’s theme will kick off a year-long campaign on maternal and newborn health. This initiative will encourage governments and the healthcare sector to intensify their actions to eliminate preventable maternal and newborn deaths.
image source: https://www.who.int/
Here are seven simple but powerful habits that create strong starts for mothers, babies, and families—laying the foundation for a healthier future generation.
Every mother deserves a safe pregnancy. Every newborn deserves a strong start. And every small action—from a shared meal to a timely checkup—can shape a healthier, more hopeful future for generations to come.
This World Health Day, let’s champion the quiet, powerful beginnings that make all the difference.
Disclaimer
The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
Are you sitting down? Your butt may have gluteal amnesia — the fancy term for dead butt syndrome.
But don’t panic. Your butt isn’t technically dead and it didn’t forget you on purpose. Gluteal amnesia happens when you sit more than you stand, e.g. at a desk job. So, if you spend hours a day on your gluteus maximus with minimal movement, the muscles in your butt may be on life support. But there are steps you can take (literally) to prevent and strengthen your glute game which can help improve your health overall.
Dead butt syndrome happens when your glute muscles become underactive, which makes them weak over time. This can keep them from adequately doing their job, which is to support and stabilize your pelvis, hips and back and keep your body in proper alignment.
Weak glute muscles cause the surrounding muscles and other parts of the body to overcompensate, which can lead to abnormal wear and tear on joints, pain, injury and long-term health problems.
The top offender of dead butt syndrome: sitting.
You sit on your gluteus maximus muscle — the largest muscle in the body. Over time, sitting at a desk or on the couch causes glute muscles to adapt and lengthen and lose the ability to fully contract or relax like they should.
Sitting for long periods of time also leads to tight hip flexor muscles — the muscles that support everyday activities like walking, running and climbing the stairs.
Hip flexor muscles that are too tight cause the gluteal muscles on the opposite side of the hip to become longer and weaker over time. This can lead to pain and injuries and affect the way you walk.
Sitting, a lack of exercise and overall sedentary lifestyle all contribute to dead butt syndrome.
One way you can test for dead butt syndrome is by doing a pelvic bridge.
Start by lying on your back, knees bent with your ankles below your knees. Next, lift your hips until they are level with your knees. Feel any tension or cramping in your lower back or hamstrings? You may have dead butt syndrome.
Strengthening the muscles and moving more can help with some symptoms of gluteal amnesia. But you should talk to your healthcare provider if you think you may have dead butt syndrome. More serious cases may need imaging tests to rule out other problems or a referral to a physical therapist or sports medicine provider for treatment.
Dead butt syndrome gets worse over time so the good news is that you can take steps every day to keep the syndrome at bay.
There are many different exercises and stretches that can increase the blood flow to your glutes and strengthen the areas that need reviving. You may want to consider:
Standing hip extension
Glute bridge
Hip hinge
Hip flexor stretch
It’s up to you to get off your butt and take care of your derriere.
Sitting all day is bad for your health overall and dead butt syndrome can lead to serious problems. But simple lifestyle choices such as sitting less and moving more can help keep your glutes in good health.
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Deskercise, or desk exercises, are simple movements office workers can perform at their desks to improve circulation and reduce the risk of deep vein thrombosis (DVT). These exercises counteract the effects of prolonged sitting, which is a key contributor to poor blood flow and clot formation.
Effective Deskercises to Prevent DVT
Integrating these exercises into your workday can make a significant difference in preventing DVT and improving overall health. Would you like suggestions for incorporating these into a daily routine?
Disclaimer
The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
If you run a women’s fitness business—whether it’s a personal training service, online coaching, gym, or activewear brand—your online reputation matters. People trust reviews. They trust what they read on Google. And they notice when your name shows up on a complaint board.
These sites are public. They rank high in search. And once a listing is up, it can stay there for years. Even if it’s false or posted by someone who never used your service.
Here’s how to handle it, get it removed (if possible), and protect your brand.
Women’s fitness is personal. It’s about health, trust, and transformation. If someone searching for your name finds a post that says you’re rude, unsafe, or dishonest—even if it’s not true—they’ll move on.
A BrightLocal study found that 94% of people say a single negative review has made them avoid a business. That includes anonymous complaints with no proof.
One studio owner I know had a listing on a complaint site from a former friend pretending to be a client. The post accused her of “body shaming” and “unsafe workouts.” She lost four regulars before she even saw the post.
Start by Googling your business name in incognito mode. Look for:
If anything shows up, screenshot it. Save the link. Make a note of what it says and when it was posted.
If you don’t own your name as a domain or haven’t claimed your Google Business profile, do that now. Controlling your name online helps in the long run.
Most complaint sites allow free speech. But they still have rules.
A listing can sometimes be removed if it includes:
Some posts violate the site’s terms without looking extreme. Always check the site’s reporting or content policy section.
One trainer I helped had a complaint that included her email and phone number. That post was removed in three days after she reported it for privacy violation.
Each complaint board has its own process. Here’s how to work with them.
Look for a “report” or “flag” button. Or find a “Contact Us” page. Be specific in your message. Point out which rules the post breaks. Keep it short and professional.
Avoid writing long emotional responses. The goal is to make it easy for the site to say yes.
Some sites let users edit or delete their posts. If you know who posted it and think they were a real client, reach out calmly.
You can say: “I saw your post. I’m sorry your experience wasn’t what you expected. I’d love to make it right. If you’re open to removing the post, I’m happy to offer a refund or a free session.”
This won’t work every time. But it’s worth trying—especially if the post came from a misunderstanding or miscommunication.
If the site won’t take the post down, your next move is to bury it.
Create content that ranks higher than the complaint. Start with:
Google ranks newer, relevant content higher—especially if it’s posted consistently.
One bootcamp coach started a weekly blog answering common fitness questions. After six posts, her new content pushed the complaint listing off page one.
Claim and update your profiles on:
Positive reviews and active profiles help push down complaint links. They also build trust with new clients.
If the complaint is hurting your business and won’t come down, you may need outside help.
Some online reputation companies specialize in removing or suppressing complaint board listings. They work with lawyers, SEO experts, and public relations pros to clean up search results.
If you go this route, ask for real examples of past removals. Avoid companies that promise “instant results” or charge huge upfront fees.
Once the complaint is handled, build habits to protect your name.
After a great session, send a quick message with a review link. Focus on Google and Facebook.
Even a short “Loved the workout, felt strong and supported” builds trust.
Set Google Alerts for your name, business, and top programs. This way, you’ll know if anything new pops up.
Check your search results once a month. If something bad is creeping up again, act fast.
Don’t let one bad post stop you. Keep posting tips, updates, and wins. Share transformations, workout clips, and real moments from your classes. The more visible you are, the more control you have over what people see.
A complaint board post can feel personal. But you can fight back. Remove what you can. Bury what you can’t. Keep building content and trust.
You’re helping people feel strong, confident, and capable. Don’t let one angry post ruin that. Take action, own your space, and keep lifting others.
Your voice—and your fitness brand—deserves to be seen for what it is.
Disclaimer
The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
America is one of the most culturally diverse countries in the world. In addition to racial and ethnic diversity, more than 350 languages are spoken in the U.S. In fact, 1 in 5 people speak a language other than English at home, according to the U.S. Census Bureau.
But for some people, cultural diversity means important health information can get lost in translation. Research shows that cultural barriers and language play a big role in misinformation and miscommunication between healthcare providers (HCPs) and patients.
In the early 2000s, the government started requiring that HCPs learn cultural competence to help improve the quality of care.
Cultural competence in healthcare refers to a provider’s ability to understand, appreciate and engage with people across cultures. The idea is that the more HCPs know about different cultural backgrounds, the better the care will be.
In theory, cultural competence sounds good, but it has some flaws. For one, the concept suggests that there’s a core set of data that applies to specific groups of people, which can lead to bias and stereotypes. Cultural competence also suggests that a person can become fully culturally competent. But that’s not exactly the case.
“It quickly becomes apparent there’s no way that you can be culturally competent because you’re going to run into so many cultures and then variations within culture,” said Patricia Geraghty MSN, FNP-BC, WHNP, a nurse practitioner and member of HealthyWomen’s Women’s Health Advisory Council (WHAC, who has been working in women’s health delivering bilingual care for more than 20 years.
The concept of cultural competence isn’t bad, Geraghty noted, but there’s been a shift toward the practice of cultural humility in recent years.
Cultural humility is the ongoing process of self-reflection and self-critique of bias by HCPs, as well as the acknowledgment that culture is always evolving — there’s no endpoint.
“Intellectual humility is acknowledging and owning one’s own biases and limitations, and interpersonal humility is being open and prioritizing the well-being of others, which, as healthcare providers, that’s why we’re in the room,” Geraghty said.
Cultural humility can help enhance the relationship between the HCP and patient in different ways.
These can include:
“When someone who is part of a marginalized group feels like their provider is listening and understanding what’s important to them — that does a lot,” Geraghty said.
Trust can help people feel more secure and open and lead to better health outcomes. In addition to more personalized and effective care, cultural humility can help foster a more equitable healthcare system.
Health equity is basically the idea that everyone has the same opportunity to live their healthiest life possible regardless of social, economic, geographical background. Social determinants of health (where you’re born, live, work, play and age) as well as biological determinants (e.g., being a woman or a person assigned female at birth) affect the potential for a healthy life.
Unfortunately, there are many factors that challenge health equity today. These can include:
Structural, social and institutional disparities are often made worse by stereotypes and discrimination.
Cultural humility can help HCPs take steps toward greater health equity through trust, listening to lived experiences and education to eliminate racism and bias.
Read: Social Determinants of Health, Health Disparities and Health Equity >>
Health disparities are a complex problem, but everyone deserves reliable health resources and services in a language that they can understand. A lack of clear and reliable information can lead to serious health problems, such as errors with medication, misdiagnosis and delays in care among other concerns that could be avoided with proper communication.
Health insurance companies are a good place to start to ask for a list of HCPs that may speak your primary language. Or ask friends and family for recommendations. If there isn’t a list to choose from — don’t sweat. Most clinics and hospitals that accept federal money are required to provide free language assistance such as a translator or document translation.
Another option: download a translation app on a smartphone. One study found patients and their HCPs who used online translation tools such as Google Translate increased satisfaction for the visit by 92%.
Geraghty said translation via smartphone has come a long way, but it’s always a good idea to be proactive and let the staff know your primary language and cultural considerations before meeting with a HCP. The more information the better as it can help everyone involved be prepared to focus on what’s most important — your health.
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El cáncer pulmonar es el segundo tipo de cáncer más común de las mujeres en EE.UU. y casi 60,000 mujeres murieron de cáncer pulmonar en 2024, más que de cualquier otro cáncer.
Los avances de métodos para detectar y tratar el cáncer pulmonar han mejorado esta situación, pero todavía falta mucho por hacer. Aunque 1 de cada 4 muertes de cáncer son causadas por el cáncer pulmonar, menos de 1 de cada 10 subvenciones federales de investigación se otorgan para financiar estudios de cáncer pulmonar.
“El cáncer pulmonar es una enfermedad que tiene desenlaces clínicos muy malos y desafortunadamente no hay mucha esperanza”, explicó Nan Sethakorn, M.D., Ph.D., oncóloga médica y profesora adjunta de la Universidad Loyola Chicago. Debe haber más educación y concientización acerca de los nuevos tratamientos disponibles de cáncer pulmonar”, agregó.
Lee:Tratamiento contra el cáncer pulmonar: Siguientes pasos después del diagnóstico >>
La inmunoterapia es un tipo de tratamiento contra el cáncer que usa el sistema inmunológico de tu cuerpo para eliminar células cancerosas y es útil para que algunas personas con cáncer pulmonar vivan más tiempo. Según Sethakorn, la inmunoterapia ha jugado un papel importante en el tratamiento contra el cáncer en los últimos años.
En las décadas de los ochentas y los noventas, se desarrolló el campo de la inmunobiología, en base a investigaciones que empezaron varias décadas antes que sugerían que el sistema inmunológico juega un papel importante en el desarrollo del cáncer. Pero Sethakorn dijo que no fue hasta los primeros años del nuevo milenio que las inmunoterapias modernas con las cuales estamos familiarizados, tales como pembrolizumab (Keytruda), se volvieron relevantes.
Se aprobaron inmunoterapias para personas que recibieron tratamiento con quimioterapia estándar cuando sus cánceres volvieron a aparecer. Los investigadores observaron desenlaces clínicos tan exitosos usando la inmunoterapia que el siguiente paso fue proporcionarlo a personas como su tratamiento inicial para cáncer pulmonar.
Eso también tuvo éxito y la inmunoterapia se usó como tratamiento de primera línea para el cáncer pulmonar, incluso en etapas avanzadas y ahora se usa para tratar etapas tempranas de cáncer pulmonar.
“Recordar los varios grupos que hicieron estas investigaciones fundamentales de inmunobiología me da una enorme sensación de humildad”, dijo Sethakorn. “Hemos tenido resultados asombrosos con el uso de fármacos más efectivos, tales como estas inmunoterapias, pero eso tomó algunas décadas”.
Desafortunadamente, la tasa de supervivencia a cinco años para el cáncer pulmonar, el porcentaje de personas que viven cinco años después de recibir un diagnóstico de cáncer, apenas supera 1 de cada 4 personas (el 26.7%) .
Según un estudio de 2024 de la revista JCO Oncology Practice, “no se ha financiado adecuadamente la investigación de muchos cánceres de incidencias y tasas de mortalidad altas”. Las investigaciones contra el cáncer pulmonar recibieron aproximadamente $300 millones en subvenciones de los National Institutes of Health [Institutos nacionales de la salud] (NIH) en 2019. Aunque eso podría parecer bastante, es extremadamente caro realizar investigaciones y ensayos clínicos. Y para tener una idea de lo que esa cantidad de dinero representa: $300 millones es menos de la mitad del presupuesto que financia los sitios web relacionados con el cáncer de próstata y de mama. El cáncer de mama, por ejemplo, causa el 15% de las muertes de cáncer, pero recibe más del 20% de financiamiento para investigaciones.
Las desigualdades en la diversidad de los participantes en las investigaciones son un problema en lo que se refiere a los ensayos y a los desenlaces clínicos en lo que se refiere a investigaciones relacionadas con el cáncer pulmonar.
El ensayo Pragmatica-Lung [Pulmonar pragmático] tiene el objetivo de estandarizar el diseño de los ensayos clínicos como resultado de esfuerzos de los NIH y de la FDA [Administración federal de medicamentos] para reducir los obstáculos para la participación en ensayos haciendo que sea más fácil para los pacientes registrarse, que sea más fácil para los investigadores realizar ensayos y que se incremente la diversidad de los participantes. “La participación de grupos que históricamente han tenido poca representación, tales como pacientes de raza negra, mujeres e hispanos, concuerdan más con las tasas de cáncer de estos grupos”, explicó Sethakorn.
Otras formas para reducir las disparidades del financiamiento para investigaciones relacionadas con el cáncer pulmonar incluyen el trabajo de grupos que defienden los derechos de los pacientes. Los defensores de los derechos de los pacientes, conocidos también como colegas revisores, hablan sobre los beneficios y las inquietudes de los estudios y de lo que implican los tratamientos. “Nuestro trabajo implica dar visibilidad a las necesidades y opiniones de nuestros grupos relacionados con el cáncer”, dijo Christina Sisti, DPS, MPH, defensora de los derechos de pacientes con cáncer.
Sisti habla con otras personas en la comunidad de pacientes con cáncer acerca de ensayos clínicos y cómo personas pueden participar. “Descubrí que el departamento de defensa y el Instituto nacional contra el cáncer tienen oportunidades relacionadas con la defensa de los derechos de los pacientes de investigaciones”, dijo Sisti. El primer paso para convertirte en un defensor de los derechos de los pacientes de investigaciones, agregó, es responder formularios de sus sitios web.
Los ensayos clínicos facilitan un acceso temprano a nuevas terapias prometedoras que no han sido aprobadas todavía por la FDA según Sethakorn. “Es la forma en que nosotros, como comunidad de investigación médica, empezamos a entender cuán efectivo puede ser un tratamiento y qué efectos colaterales deben monitorearse”.
Los registros, un tipo diferente de investigación médica, no proporcionan dispositivos médicos ni tratamientos nuevos. En vez de eso, se enfocan en las características e información de personas que reciben diagnósticos de cáncer. Por ejemplo, pueden ser útiles para responder preguntas de ciertos tipos de cáncer pulmonar que tienen diferentes consecuencias para los hombres y para las mujeres.
Pregunta a tu oncólogo si hay ensayos clínicos en los que sería conveniente que participes. Frecuentemente podrá decirte si hay ensayos clínicos que estén buscando participantes en ese momento. También puedes hacer búsquedas en ClinicalTrials.gov. Organizaciones o grupos de defensa de derechos de pacientes tales como la American Lung Association [Asociación estadounidense del pulmón] o la Sociedad estadounidense contra el cáncer también tienen recursos para que personas encuentren ensayos clínicos.
Este recurso educativo se preparó con el apoyo de Daiichi Sankyo.
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I’m from Michigan so I know what cold is. I now live in Las Vegas — because I know what cold is.
All those years digging my car out of the snow has given me freeze-phobia — I try to avoid anything that’s even associated with the cold. I drink hot tea. I prefer my true crime cases solved. I don’t know where Iceland is on a map. And I’m a fan of Netflix — you can keep the chill.
It’s hard for me to wrap my brain around doing anything arctic on purpose. But cold plunges have become increasingly popular in recent years, especially on social media. The hashtag #coldplunge has more than billion views on TikTok, and “cold plunge women” has more than 144 million posts.
Read: The Latest Fitness TikTok Trends: Heart or Hype? >>
A cold plunge, also called cold-water immersion, is when you submerge yourself in frigid water (around 50 degrees) in an effort to achieve physical and/or mental health benefits. Think of a bathtub filled with cold water and ice cubes or a chilled body of water like a lake.
Cold plunging isn’t new — the icy pastime dates back to ancient Greece. And you’ve probably seen athletes and entertainers like Lady Gaga posting photos of ice baths after a taxing workout.
Supporters of the plunge say it can help improve health conditions such as inflammation and chronic pain, as well as promote overall well-being.
Research on the benefits of cold plunging is ongoing, and most of the studies out there right now involve small groups of people. But there is some science to note behind the potential health perks of cold plunging.
Possible benefits may include:
It takes anywhere between three and five minutes for the cold to penetrate past the skin, so most people stay in the water between five and 10 minutes.
Beginners typically start at 30 seconds or a minute and work their way up.
The time spent in the water also varies depending on the temperature and your comfort level, but staying in for more than 10 minutes increases the risk for hypothermia.
Anyone with a chronic health condition should talk to a healthcare provider before trying cold-water immersion.
A cold plunge can cause increased breathing, heart rate and blood pressure. This can put stress on the heart and may cause abnormal heartbeats, so people with heart disease or a heart condition should avoid cold plunging.
You may also want to skip it if you’re living with:
Other risks of cold plunging include drowning and hypothermia.
Cold-water immersion isn’t for everyone. And without significant research, it’s hard to know if the potential health benefits are worth the freeze. Talk to your healthcare provider before jumping in.
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Cigarette smoking among drug dependent pregnant women is alarmingly high, estimated at 77 to 99%. Smoking during pregnancy can cause complications during delivery such as premature rupture of membranes, abruptio placentae, placenta previa, premature birth, low-birth-weight, stillbirth and sudden infant death syndrome (SIDS). About 20% of low-birth-weight births, 8% of preterm deliveries, and 5% of all delivery deaths are linked to smoking during pregnancy. It is important to stop smoking prior to pregnancy in order to help give your baby the best chance of survival.
If you quit smoking before you become pregnant (or during the first 3 months of your pregnancy), your risk of having a baby with low birth weight is the same as that of a woman who does not smoke.
Before pregnancy, you can use almost any approach to kick the habit, including behavioral methods, nicotine replacement products (gum, patches and inhalers), antidepressants and smoking cessation drugs. But during pregnancy, some of the medications may not be safe. These agents may pass through the placenta to reach your baby.
Set a date to quit and stick to it.
Disclaimer
The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
Perimenopause and menopause symptoms can be brutal. Most women and people assigned female at birth (AFAB) experience vasomotor symptoms (VMS) — night sweats and hot flashes — among other symptoms that can disturb your sleep, affect your mood and lower your quality of life. And these symptoms can go on for years and are associated with an increased risk of serious health conditions over time.
The good news is that there are treatments that can help with symptoms, bone loss and other issues that happen during menopause. Hormone therapy — treatment that replaces hormones like estrogen and progesterone that fluctuate during perimenopause — is approved by the Food and Drug Administration (FDA) and considered the gold standard for care, according to the American College of Obstetricians and Gynecologists (ACOG).
However, misinformation about the safety of FDA-approved hormone therapy is still shared online despite evidence that the treatment is safe for most people. The misinformation has led to an increase in interest in alternative hormone treatment options, namely compounded hormone therapy (HT).
Compounded HT is sometimes marketed as a “natural” alternative to FDA-approved hormone therapy because it may include plant-derived hormones called bioidentical hormones. In reality, there are FDA-approved bioidentical hormone options, such as estradiol and micronized progesterone, and not all bioidentical hormones are compounded.
In addition to seeking a more “natural” alternative for hormone therapy, people look to compounded HT for customized doses and alternative delivery methods that may not be an option with hormone therapy regulated by the FDA. But the lack of regulation means you don’t know for sure what you’re getting.
Compounded medications are prescription drugs that are altered to fit your specific health needs. For example, if you’re allergic to a type of dye in a medication, the compounded version would be made for you without the dye. The process involves a specially trained pharmacist called a compounding pharmacist who will mix, alter and/or combine ingredients specific to your needs that can’t be met with a standard, mass-produced drug.
The concern with compounded medications is that commercial drugs are approved by the FDA and compounded medications are not. So, in the case of hormone therapy, a customized treatment sounds good, but the safety, efficiency and quality of the drug can’t be verified because it hasn’t been approved by the FDA.
Hormone pellets, for example, are a common compounded HT that are inserted under the skin every three months. But as a compounded drug, hormone pellets are not approved by the FDA, which means the dosage, quality and other important factors haven’t been tested. And pellets are designed to dissolve over time — not to be removed — which can be a problem if you experience side effects or health issues.
“There’s no data to suggest preferred safety or preferred benefit [for compounded drugs],” said Lisa Larkin, M.D., an internal medicine, women’s health and menopause physician and member of HealthyWomen’s Women’s Health Advisory Council.
Read: Clinically Speaking: What You Need to Know About Hormone Therapy >>
Larkin said her patients are hearing about compounded HT from sources on social media — like dieticians, estheticians and menopause coaches who are in credible professions yet have no formal medical training in hormone therapy — rather than from experts on hormone therapy. “They don’t have enough information to be giving them the truth. I think that people who don’t prescribe the medication should not be [saying who] should be taking prescription medications,” she said.
Both hormone therapy and compounded hormone therapy require a prescription from a healthcare provider. Larkin said people are looking to less reputable sources — a medspa or certain telehealth options — as a way to get compounded HT. “There’s lots of places and ways people are getting compounded products, and it’s lots of times compounded testosterone — and very high doses,” Larkin said. “Patients are coming in after a couple years on the compounded testosterone who were starting to have the male effects of the testosterone and now looking to get off [of it] because they’re bothered by it.”
In addition to dosage concerns, research shows unregulated hormone therapy can lead to serious health consequences including stroke, renal failure and even death. The lack of evidence on the benefits of compounded HT compared to FDA-approved HT has led professional organizations like ACOG and The Menopause Society to issue statements against compounded HT in favor of FDA-approved treatment when available.
When scrolling through social media, it can be hard to ignore advertisements and posts for alternative “natural” therapies to help with sleep, hot flashes, and all the other mental and physical issues that come with menopause. But if you can take FDA-approved hormones, that’s the way to be sure you’re getting consistent, effective and safe hormone therapy.
There’s a lot of misinformation on the internet about women’s health overall, so talk to your healthcare provider about your options. “Be cautious about who is giving you the advice,” Larkin said.
This educational resource was created with support from Kenvue, a HealthyWomen Corporate Advisory Council member.
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Niranjana Parthasarathi, M.D., started experiencing extreme fatigue and joint pain in her 20s. Within months, she was diagnosed with lupus. “As a medical student, I knew how serious it could be,” she said, recalling how one of her peers had tragically passed away from complications of the autoimmune disease during her internship.
Parthasarathi went on to graduate medical school, and was able to take time off during her residency when she had a flare, which is a period when the disease becomes more active. She became a well-respected internist and worked full time as an associate professor of internal medicine. But at 50 years old, she experienced a flare that led to severe acute kidney failure and left her disabled.
“I’ve unfortunately not been able to resume full-time work or even consistent part-time work,” she said.
Despite this devastating turn, Parthasarathi, now 62, still considers herself fortunate, She had the network and access to care to get quickly diagnosed, and she continues to have health insurance that covers her ongoing medical care, which has included chemotherapy, blood transfusions and immunosuppressants. For those who don’t have access to resources, the costs related to lupus can be devastating.
“If you have to get admitted to the hospital, go to the emergency room, get all of the testing that you need to have done when you have lupus — because you’re really supposed to be getting your blood and urine tested every three to six months — those costs add up over time,” said Jessica Williams, M.D., MPH, assistant professor of medicine in the Division of Rheumatology at the Emory University School of Medicine in Atlanta, Georgia.
The financial burden of managing lupus can be very different based on how severe your disease is, according to a study published in The Journal of Rheumatology. Researchers found that patients with severe lupus faced healthcare costs of $52,951 annually — while mild cases cost an average of $21,052. These expenses also include indirect costs, such as lost wages. A 2021 study published in Lupus Science & Medicine had similar findings, putting the costs at $68,260 for severe cases and $13,415 for mild cases
The study also revealed that even before diagnosis, patients who would eventually develop severe lupus already had significantly higher healthcare costs.
“Lupus is an autoimmune condition that can impact any part of the body, so patients can have symptoms involving many different organ systems,” Williams explained. On average, it takes five or six years for most patients to receive a correct diagnosis, partly because symptoms can come and go in periods of flares and remission and also because symptoms can be mistaken for those of other chronic conditions. This delay can lead to additional medical expenses while patients see multiple healthcare providers looking for answers.
The financial strain is particularly tough for women, who account for 9 out of 10 lupus cases. Many women with lupus are in their reproductive years, a time when flares from the disease can interfere with their career and financial stability. One study found that being a female with lupus was associated with unfavorable work outcomes, which include lost days of work and quitting work for health-related reasons. Symptoms like extreme fatigue, pain and brain fog can affect patients’ ability to do their jobs well, and more severe flares can lead them to reduce their working hours, switch to less demanding roles or even leave the workforce entirely.
“Women with lupus are often just financially devastated, and with our healthcare system being tied to employment the way it is, it can be impoverishing,” said Parthasarathi, whose book, “Lupus: In the Jaws of the Wolf,” is a personal guide to living with the disease and navigating the healthcare system.
Lupus also worsens economic inequalities for women of color. “We know that lupus is more common in racial and ethnic minority patients of all backgrounds,” said Williams, who was the lead researcher on a 2023 study published in Rheumatology that looked at demographic disparities in health outcomes for lupus patients.
Black and Hispanic women, in particular, are more likely to develop lupus and experience more severe forms of the disease, including complications like lupus nephritis, which can lead to kidney failure and the need for dialysis — a potentially huge expense. Williams highlights that these groups are not only at higher risk for developing lupus but are also more likely to face poor outcomes due to factors such as limited access to healthcare, being underinsured and environmental exposures.
These groups are also more likely to have public forms of insurance, and Williams’ study revealed that patients on Medicare or Medicaid have higher rates of 30-day hospital readmissions and preventable lupus hospitalizations compared to privately insured patients. Additionally, lower income levels are associated with increased disease activity, organ damage, depression, work disability and mortality. Patients living in poverty often report only being able to manage their lupus during disease flares and not being able to take care of themselves while in remission because of competing demands like food and housing insecurity.
“Many of the manufacturers of drugs for lupus have patient assistance programs,” Williams said. She recommended checking with healthcare institutions about financial assistance programs and contacting local chapters of the Lupus Foundation of America, which may offer support for housing and food insecurity.
In Parthasarathi’s book, the proceeds of which are donated to the Lupus Foundation of America and Lupus Research Alliance, she emphasizes the importance of lifestyle measures that can help control the disease, particularly for those who may not have access to all available treatments. Some tips include eating more whole plant-based foods, getting extra rest, reducing stress and walking for 30 minutes per day, if possible.
For women who may be struggling to get a diagnosis, both Williams and Parthasarathi encourage advocating for oneself. Williams suggests taking photos and videos and journaling about symptoms during flares so doctors’ visits during remissions are more valuable.
To those who are diagnosed with lupus, Parthasarathi said, “I would want people to feel very empowered that they can take control of their lives. Not only are there lifestyle measures that they can take to keep themselves healthier, but they will also find that they’re more resilient than they think.”
This educational resource was created with support from Novartis.
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